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The RESPCCT study gathered data from 6096 service users across Canada who had experienced pregnancy and/or birth in the past 10 years.

The RESPCCT Survey Data Are In

Data collection for the RESPCCT Study is complete, and 6,000 people who received care during pregnancy and childbirth across Canada have responded.

The survey drew diverse, representative participation, allowing the information shared to contribute to a growing understanding of the well documented disparities in perinatal experiences and outcomes among Canadian people with various identities, circumstances, and backgrounds.

In the RESPCCT study, a diverse group of people who had recent pregnancy experiences created or chose the questions to ask. They worked with researchers and community-based organizations to develop this survey. Now, the same Community Participatory Research approach is being followed as a team of service users, community partners, health workers, and researchers explore the findings through an inclusive and representative lens. 

The RESPCCT Survey

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  • Used a community-led, person-centered instrument 
  • Was distributed online 
  • Captures information about respondents’ identities, backgrounds, circumstances, access to care, provider type, and outcomes
  • Measured 17 domains of maternity care, including autonomy, respect, mistreatment, trauma, and discrimination
  • Drew more than 6,000 responses and had representational participation 

Community-Led Design

The RESPCCT Study is following these steps, using a Community Participatory Action Research (CPAR) approach. Currently on Step 5, the data gathered is being analyzed to identify key findings and key messages. Ultimately, the information will be used to improve childbearing care for all types of communities.

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RESPCCT Methods Paper Published

The RESPCCT Survey’s unique community-led design has been described in a paper just published in the Journal of Participatory Research Methods. In the paper, the authors describe how the person-centered survey was co-created, how the study was co-led by a Community Steering Council alongside a multi-disciplinary group of researchers and clinicians, and how it was pilot tested by service users from across Canada.

Share the Methods Paper

Spread the word about RESPCCT on your social media by sharing these tiles about the recently published article in the Journal of Participatory Research Methods.

Coming Soon!

Next Steps: We Need You!

Now we are working with service users, community partners, health workers, and researchers to analyze the stories of respect and disrespect during pregnancy and childbirth. We invite people who identify as Indigenous, racialized, 2SLGBTQIA+, recent immigrants and refugees as well as those living in rural/remote communities, people with disabilities, high BMI, a history of incarceration, substance use, or pregnancy loss to collaborate with us as we explore the data.

We aim to identify the drivers of disparities using an intersectional approach, interpret the findings through a community participatory process, and ultimately co-develop a multimedia information package for clinicians, educators, policymakers, and the public.

Join an Analysis Group

Are you a researcher, scholar, or community member  from a marginalized or underrepresented group with lived experience of pregnancy or childbirth? Join a RESPCCT analysis group!

Your lived experience makes you especially qualified to analyze and interpret specific population data, and your insights are more likely to encourage acceptance amongst affected communities.

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